Tuesday, April 24, 2012

The World Health Organizations Report Dementia: A Public Health Priority Part II


This is Part II in a blog series about the World Health Organizations’ recent report entitled, Dementia: a public health priority, released in early April 2012. Part I was posted on April 19th on this blog site.

So what is a current definition of Dementia?
The WHO report on Dementia: a public health priority provides the following detailed narrative of what neurological science considers dementia:

“Dementia is a syndrome due to disease of the brain - usually of a chronic or progressive nature - in which there is disturbance of multiple higher cortical functions, including memory, thinking, orientation, comprehension, calculation, learning capacity, language and judgment. Consciousness is not clouded. The impairments of cognitive function are commonly accompanied, and occasionally preceded, by deterioration in emotional control, social behavior, or motivation. This syndrome occurs in a large number of conditions primarily or secondarily affecting the brain.

Alzheimer’s disease is the most common form of dementia and possibly contributes to 60 -70% of cases. Other major contributors include vascular dementia, dementia with Lewy bodies, and a group of diseases that contribute to frontotemporal dementia. The boundaries between the subtypes are indistinct and mixed forms often co-exist.

Dementia affects each person in a different way, depending upon the impact of the disease and the person’s pre-morbid personality. The problems linked to dementia can be understood in three stages:

early stage - first year or two:
middle stage - second to fourth or fifth years;
late stage - fifth year and after.

These periods are given as an approximate guideline only - sometimes people may deteriorate more quickly, sometimes more slowly. It should be noted that not all persons with dementia will display all the symptoms.”

The WHO report goes on further to list the following symptoms that are associated with each of the early, middle and late stages of dementia syndrome.

Early Stage
Becoming  forgetful, especially regarding things that just happened

May have some difficulty with communication, such as difficulty in finding words

Become lost in familiar places

Lose track of time, including time of day, month, season, or year

Have difficulty making decisions and handling personal finances

Have difficulty carrying out complex householding tasks

Mood and behavior:
- may become less active and motivated and loose interest in activities and hobbies

- may show mood changes, including depression or anxiety

- may react unusually angry or aggressively on occasion

Middle Stage
As the disease progresses, limitations become clearer and more restricting, an individual becomes very forgetful, especially of recent events and people’s names

Have difficulty comprehending time, date, place and events; may become lost at home as well as in the community

Have increased difficulty with communication (speech and comprehension)

Needs help with personal care: (i.e. toileting, washing, dressing)

Unable to successfully prepare food, cock, clean or shop

Unable to live alone safely without considerable support

Behavior changes may include wandering, repeated questioning, calling out, clinging, disturbed sleeping, hallucinations, (seeing or hearing things which are not there)

May display inappropriate behavior in the home or in the community (e.g. disinhibition or aggression)

Late Stage
The late stage is one of nearly total dependence and inactivity. Memory disturbances are very serious and the physical side of the disease becomes more obvious.

The person is usually unaware of time and place

Have difficulty understanding what is happening around them

Unable to recognize relatives, friends and familiar objects

Unable to eat without assistance, may have difficulty swallowing

Increasing need for assisted self-care (bathing and toileting)

May have partial or complete bladder or bowel incontinence

Change in mobility, may be unable to walk or be confined to a wheelchair or bed

Behavior changes may escalate and include aggression towards caregiver, nonverbal agitation (kicking, hitting, screaming or moaning)

Unable to find his or her way around in the home

The preceding  was quite a sobering list of symptoms outlined in the 3 stages.

The purpose of this report is to raise worldwide public awareness about the scope and breadth of this disease as well as advocating greater governmental action and involvement nationally and internationally.

Final comment
The Alzheimer’s Association of America released a projected statistic this past week about Alzheimer’s (which represents up to 70% of all dementia cases) that was stunning:

the cost of dealing with Alzheimer’s disease during the next 40 years will cost 20 trillion dollars.

Dementia which includes Alzheimer’s disease is a worldwide scourge that must be stopped.


Jeff Dodson
April  24th 2012

Thursday, April 19, 2012

Dementia: A Public Health Priority Part I


The World Health Organization (WHO), a branch of the United Nations, and Alzheimer’s Disease International, just issued a 112 page report entitled,  Dementia: a public health priority.

It is a well crafted and well written report that warrants first hand reading if you wish to educate yourself further about the spread of this fatal disease.

Because of the amount of information contained in this report, I have decided to share the most informative aspects of it in two parts.  Part One, here, will highlight the more basic worldwide statistical data on dementia and what the report suggests ought to be done.  I will devote a second followup blog; Part Two, devoted to what dementia is and an outline of its symptoms.

Alzheimer’s has finally gotten big enough, scary enough and definitely lethal enough to individuals and society as a whole that it has captured the attention of most of the world governments. In the report, there is a lot of language about dementia prevalence or how widespread it has grown.

Listed under the opening section of the report called the Executive Summary are some frightening statistics that follow here.
In 2010 the total number of people with dementia worldwide was estimated at 35.6 million with a projection to nearly double every 20 years. By the year 2030, the total will be 65.7 million and by the year 2050 the total will come to 115.4 million.

The total number of new cases of dementia each year worldwide is nearly 7.7 million, implying one new case every four seconds.
In 2010, the worldwide estimated costs of dementia was approximately $604 billion (in US dollars).

The following quote from the report speaks to risk factors associated with dementia.

“Research identifying modifiable risk factors of dementia is in its infancy. In the meantime, primary prevention should focus on targets suggested by current evidence. These include countering risk factors for vascular disease, including diabetes, mid-life hypertension, mid-life obesity, smoking and physical inactivity.”

A secondary headline portion of the report listed as Key  Messages contains takeaway facts for
everyone.
Dementia is not a normal part of aging.

35.6 million people were estimated to be living with dementia 2 years ago. There are 7.7 million new cases of dementia each year. The accelerating rates of dementia are cause for immediate action, especially in low and middle income countries.

The huge cost of the disease will challenge health systems to deal with the predicted future increase of prevalence. The 2010 costs, noted at $604 billion, are set to increase even more quickly than the prevalence.

People live for many years after the onset of symptoms of dementia. With appropriate support, many can and should be enabled to continue to engage and contribute within society and have a good quality of life.

Dementia is overwhelming for the caregivers and adequate support is required for them from the health, social, financial and legal systems.

Countries must include dementia on their public health agendas. Sustained action and coordination is required across multiple levels and with all stake holders - at international, national, regional and local levels.

People with dementia and their caregivers often have unique insights to their condition and life. They should be involved in formulating the policies, plans, laws and services that relate to them.

The report summarizes what I would refer to  as a ‘call-to-arms-list’ of steps to be taken.
These include:

Promoting a dementia friendly society globally by:
Making dementia a national public health and social care priority worldwide.
Improving public and professional attitudes to, and understanding of dementia.
Investing in health and social systems to improve care and services for people with dementia and their caregivers.
Increasing the priority given to dementia in the public health research agenda.

There are world nations ahead of the curve with respect to this disease as well as many that are well behind it. 
Japan is one that is ahead of the dementia curve having developed it’s own public long-term care insurance system in April 2000. 

Austria is another nation that has developed a program well ahead of many other nations. Austria offers a two week respite program for caregivers and people with dementia that includes time off and an educational program for the caregiver and a package of cognitive memory training, occupational therapy, and physical training for the person with dementia.

There is still an urgent need to stir up public awareness and understanding of what dementia is and what it is not across all levels of our world society. Raising awareness and advocacy are two of those basic first steps. 

Part Two of this blog series will focus on an up-to-date definition of dementia and its symptoms.



Jeff Dodson
April 19th 2012